These two photos were taken 48 hours apart. One is M.E. on a good day. The other is M.E. on a bad day.
I am a person with chronic illness. I have M.E. and two auto-immune diseases. Good days are when I can get out and about using my mobility scooter – this has become my lifeline. Due to muscle weakness and joint pain, I would not be able to leave the house without it.
Bad days are when I’m bed bound and I can’t do anything mentally or physically because my body just stops functioning all together. I NEVER have a day when I feel totally well.
Myalgic Encephalomyelitis or Chronic Fatigue Syndrome as its often called, is a debilitating and life changing disease, and one I feel I’m lucky currently to only have at a moderate level.
Even though my life is completely different than it was a few years ago (I was a fitness instructor and personal trainer before I became an author.) most of the time I’m not bedridden or permanently in a wheelchair as some sufferers are.
I spend the majority of my time at home. I use crutches, a rollator and a mobility scooter to get around, as pain and weakness in my muscles and joints makes walking for more than a few steps very difficult.
M.E. is more than feeling ‘a bit tired’. M.E. is a chronic, multi-system condition affecting the whole body. The World Health Organization classes it as a neurological disease. The effects of M.E. are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work. M.E. affects 15 to 30 million women, men and children around the world and often begins after contracting a virus.
If you’d like to know more about M.E. and how it can affect you or someone you know, there is a lot of information here on the M.E. action website. https://www.meaction.net/learn/what-is-me/